Infantile Spasm | Infantile Spasm Information

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ANY hopeful information regarding infantile spasms?
I'm a first time mom, and my 7 month old son has been diagnosed with infantile spasms. Everything I've read on the internet has done nothing but scare the hell out of me. It says there is an 80 % chance that he will have mental retardation. This is so heart breaking for me as I'm sure it is for any parent. I cry and cry and cry despite all the support from my family. My son will probably be starting a treatment called ATCS. I was just wondering if anyone has been through anything similar. Did this treatment help? I've already looked up all of the side effects and everything but I'm just curious about whether or not it has actually helped. My sons spasms have NO cause. No head trauma, meningitis, trauma at birth, etc. I'm so afraid for him. He already seems to be alot less happy then he used to be and it's breaking my heart. Any advice would be greatly appreciated.

What is infantile spasm? is there any cure? and where can I get one??

My son is 4 months with jerking response.After EEG,doctor suspects this as infantile spasm.?
Dr prescribed pyridoxine and steroid.I am worried because i am unsure of effectiveness of these medications as in the long run, steroid is immunosuppresive. Anyone with similar experience please advice. I am very worried till i cried almost every night when i see my son's painful jerks and also thinking that there would be a mental retardation possibility.However,he now responds rather normal but sometimes he does not seem to respond directionally to sound.I am interested in alternative holistic treatment that can cure my son.Any kind samaritans please help. Thank you. God will bless you and your family.

Is my son having infantile spasms?
could someone please view the link below and tell me what u think.my son has been doing this head nodding for the last 4days and is waiting to have EEG on tuesday to check for infantile spasms. would be greatful if anyone who has a child with this condition could tell me what you think.thanksyoutube.com watch?v b07zY8dchDs

What are the chances of infantile spasms going away with ACTH treatment?

Is West Syndrome (infantile spasms) hereditary?

Infantile spasms and autism?
Does anyone know where to find information about infantile spasms causing autism?

Infantile spasms advice please?
Hi, my baby was took into hospital at 7 months old following a seizure at home, he was in hospital for 11 days and we were told he has a form of epilepsy called infantile spasms wests syndrome, currently we are trailing medication to see what works for him.I dont not know alot about this as i know no one who has it, i was wondering of anyone who uses these forums is going thro the same thing?My son also doesnt spoon feed as he cant swallow anything as it all makes him choke i have two older children who never had any problems so im unsure why he is doing this please feel free to contact me if there is anyone else out there, thanks

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