And here’s a GIF to proove it! Haha .. can you spot the THREE funny people who like to “dance” in pics?

The GIF animation below won’t work till you click on the image below

7 August 2012 :

Nathanael started his day as normal. He went to school (SJK Kelana Jaya) and was in his Sensory Integration class, when we received a phone call from his teacher that Nathanael was not feeling well. Teacher said after doing some “Roller Board” therapy, he looked like he was unwell and was showing signs of wanting to throw up.

The teacher stopped the therapy and assisted with Nathanael. He threw up then, and then about 30 minutes later he had a seizure attack at school.

It was a bad attack, and one of his teachers help administer Diazepam to stop the seizure attack.

We immediately picked him from his class and rushed him to Damansara Specialist Hospital (DSH) as his peads Dr Vasantha was there. (Easier cos she knew his history, and DSH was not that far). So we drove “madly” with “flashing headlamps” and “hazzard lights” and “horning” and “swerving” in and out of LDP (did u know LDP is super Jam in the morning – before 10am) all the way to DSH!

We rushed him into the Emergency Room and both his heartbeat and blood pressure was high (HB 185. BP 140/93)  and his eyes were all red.

At DSH, we could see that Nathanael was still seizing and he finally stopped and rest at about an hour later. (When Diazepam is administered, it can knock you out for approx 8 hours).

Doctor Vasantha ensure that he was stabilized, quickly got him do an MRI to check out the insides, and referred him to his old doctor, Prof Ong in UH.

So after we transferred Nathanael to University Hospital (UH), he was moved from the Emergency Ward to the Children’s Ward and was seen by many doctors. We had to repeat his medical history and explained what happened when he was 5-months old and how he went through the Ketogenic Diet and was Seizure Free, and how after five years of being seizure free, a seizure came back!!

Doctors started Nathanael on an anticonvulsant  called Epilim or Sodium Valproate. We were concerned with the side effects of Epilim, but the main concern was to stop the seizures. So Nathanael started on the AED Drug yesterday (7 Aug 2012).

Just before we fed Nathanael the Epilim in the evening, he threw up quite a lot phelgm. Unfortunately he threw up again after feeding on Epilim, and the nurses had to arrange a second dosage for him.

8 August 2012 :

Nathanael was himself today. He behaved as he normally would and the doctors were happy with his condition. He did his EEG today, and we would get the results next week. Nathanael was discharged on Wednesday evening and came home happy and cheery.

His first stop was his bedroom, he climbed on his bed and was smiling as he was lying down on it! HOME SWEET HOME!

Meanwhile we would ask all of you to PRAY along for Nathanael that he would have NO MORE SEIZURES and that there will be NO SIDE EFFECTS when taking the Epilim Drug.

Source: http://www.livestrong.com/article/114406-epilim-side-effects-children/

Tags: nathanael, seizure, dsh, uh, prof, ong, vasantha, doctor, diazepam

 
Check out Nathanael Lee in Kids Haven school. As part of his exercise / obstacle course regime, he needs to traverse a mat with a high object in the middle.

The Purpose is to walk over the object unassisted and to maintain balance on one leg whilst walking.

Check out how Nathanael does in the video above!

Check Out how Nathanael interacts with this Speech Development app called “Vast Autism” (iTunes Link).

The iPad App, will show like a flash card simple words, when you press on them, you will see a video recording of a partial face repeating those words.

See how he swipes around on the iPad for the words and follow the sounds of the video recording. Its a great speech development tool.

Very cool ….. Keep it up Nathanael!!!

More about Vast Autism App (iTunes Link)

VAST-Autism provides unprecedented support for spoken language, combining evidence-based best practices and technology to deliver remarkable results.

VAST-Autism is a groundbreaking tool that provides state-of-the-art therapy to students with autism and motor speech programming disorders such as apraxia. VAST-Autism combines the highly effective concept of video modeling with written words and auditory cues to help individuals acquire relevant words, phrases and sentences so that they can speak for themselves. For children and individuals with strong visual skills, this can be a key to developing speech.

Ongoing research and initial pilot studies indicate that students are highly interested in VAST videos, and will almost immediately attempt lip movements or touch their mouths in response to the models. After a few short weeks, many students who were essentially nonverbal began word approximations and word attempts more readily. Perhaps, the best and most unexpected therapeutic improvements have been in the students’ ability to generalize skills. Individuals may begin attending to the speaker’s oral motor movements during daily communication and continue learning speech in a traditional, naturalistic manner.

The mirror feature promotes oral motor sequencing and self-monitoring. Using a mirror while practicing speech sounds can provide visual feedback to help individuals improve their muscle coordination and sequencing for speech production. Visual input can be an important source of feedback in developmental apraxia of speech. Individuals should focus on how to produce the target sounds/words from a model and then observe and monitor their own attempts by using a mirror.

This is the first time we see Nathanael learning to use the strength in his fingers to depress the button to make the Disney toy light up and spin.

Nathanael always loved this toy from Aunty Emily & Uncle Alvin, but he always had to asked someone else to press the button for him to see the lights and the spin, BUT Today was the first time Nathanael pressed the button by himself – and enjoyed the toy he did!

So awesome! Praise God!

Nathanael has been able to drink on his own for a long time, but today on 1 April 2012 a new Milestone occured.

During dinner … Nate picked up his own Cup and drank from it! That is such a great improvement, as previously we had to help direct him to pick up the cup or to direct it to his mouth.

Today he just DRANK! Go Nate go!! Thank God for this new Milestone!

Another Milestone that Nathanael did well this week.

Something that I may at  times take for granted – Picking a Cup and Drinking from it.

Who knew the amount of coordination, muscle tone development and conceptualization that one needed in order to drink from a cup?

We are very happy to see Nathanael picking up his own cup and drinking on his own!

Woo Hoo! Celebrate another Milestone!!

We celebrate every milestone that Nathanael accomplishes, and check out this video this week.

Nathanael sits downs and removes his own shoes and socks on his own!

Now he must put his socks in his shoes!

Kau Fu & Zoe Joy

Zoe turns 5 years old on 27 February 2012!

She’s now  a big girl and we had her Birthday Celebration together with Leon at Sunway Resort.

We had lots of fun, ate a lot, and was treated to some wonderful illusions with Victor (Hotel Illusionist).

Do a Wave ...

To celebrate Zoe’s 5th Birthday, we gave her a treat to ride on a horse.

We brought her to the Bukit Kiara Equestrian & Country Resort, where horse/pony rides were available each Sunday from 9am to 10am.

She really enjoyed herself, and we were amazed at he upright posture when she sat on the horse.