Joseph, Noah, Zoe Joy, Elijah, Nathanael

epilepsy

Good News!!!

Met Dr Choy at SJMC yesterday late afternoon. He is very happy with the progress he sees in Nathanael. We showed him the EEG report and that it recommended that we have another MRI done. He read the report & said no need la to repeat. Even if U had another one done what are […]

EEG Results are OUT!

E E G This is really quite impressive! The results came out in less than a week! Amazing. I received a call this morning at about 9.30am from HUKM Dianostics department and they said Nathanael’s report is ready for collection! We are so impressed by the promptness of the process. So Off I went to […]

Wait 2 weeks…

We finished the EEG today & it went smoothly. We had to keep Nathanael awake last night till 3am and woke him up again at 7.30am….cruel huh!! 🙂 He had only 4 hours of sleep. All this is due to the fact hat he had to sleep during the test ths morning. Thank you all […]

Pray for Nathanael– EEG Today 4.08.08

If U read this post before 10am (msian time) Monday 4th August 2008 please remember Nathanael in prayers. We are taking him to HUKM for a EEG assessment at 8.30am. What is EEG? Well it is an electroencephalogram (EEG). This test that measures and records the electrical activity of your brain. Special sensors (electrodes) are […]

FAQ:- How long more does Nate need to be on the Ketogenic Diet?

Come September 2008, Nathanael would have been on this special Ketogenic diet for 2 years. We can’t wait for the diet to come to an end, however we can’t just take him off the diet suddenly it will take 6 months to wean him off the high fat diet that he consumes everyday fo the […]

Good News! Weaning off Medication

Good News! Great News! No more medicine! YAY! Both of Nathanael’s doctors (Prof Ong & Dr Choy) has now recommended that we begin weaning off Nathanael’s medication. Currently he is on Epilim 200mg BD and a Co-Factor called Carnitine.The entire process will take 3-4months. This is a crucial step we are taking. It’s a BIG […]

Nathanael’s 200th Day on Ketogenic Diet

Amazing … 200 days have come and gone and Nathanael is doing well on his Ketogenic Diet. In fact Nathanael looks forward to his meal periods and thru his Meal periods he actually is motivated to “work” to get his food. Initially (September 2006) when we started on the Ketogenic Diet we were apprehensive. Afterall […]

Nathanael’s next step – Ketogenic Diet

We will be starting Nathanael on the Ketogenic Diet sometime by end September. We will be going to the General Hospital Kuala Lumpur (GHKL) or as some has aptly corrected us its now known as the Hospital Kuala Lumpur (HKL) [apparently its not that General anymore] We are awaiting for the confirmation dates from both […]

The Ketogenic Diet

Many of you are asking us what is this Ketogenic Diet that we are starting for Nathanael, so we have put some documentation together from a book and some internet websites. – – – – – – – – – – – – – – – – – – – – – – – – […]

Nathanael’s Fits Diary

Nathanael’s 2006 Fits Diary Below are a graphical representation of the seizures counted daily from 1 Janauary 2006 to the present month. What happens in a seizure?Excerpt from Epilepsy Canada Special cells called neurons help to form an electrical and chemical network in the brain. Under normal conditions, electrical signals move along these neurons. They […]