Comments on: Nathanael’s Medical Condition

By: Mary Ann

Mary Ann — Sun, 01 Nov 2009 16:46:39 +0000

Hi, your son is just like my 3 year old daughter who was diagnosed with idiopathic epilepsy specifically epileptic spasms when she was 2 months old. Is it ok to get your email address? I would like to seek your advice and help on different interventions. She has global delay as well. Her seizures has lessen and improved but still has mild episodes twice or thrice a week. She has 3 medications: phenobarbital, lamictal and topamax. She’s undergoing OT and PT as well. I hope you can send your email address. Thanks so much!

By: evelyn yap

evelyn yap — Sat, 11 Oct 2008 14:50:32 +0000

is really good to hear ur son progressing everyday. my daughter is 8yrs old now but when she was an infant she had a rare and agressive tumour called haemangioma kassabach merrit. she couldnt breathe and had to be ventilated. she was on full dose of steroids everyday and interferon medication and even vincristine medication for cancer.
when she was out of all the critical problem, i was not aware of her delay of development at all as she was my first baby. i did not know who to go to until one day i realised something was wrong with her as she doesnt talk much but hitting and scratching alot of babies and children wherever she goes.
then i always had to apologise to the other party. so i decided to look for a specialist at her age of 4yrs old! i went to dr.teoh hsien jin to dignosed her and to my surprised her report came out to say her development was so much delayed and was around 1-2yrs old of development. then i started to remember she started walking at the age of 3 yrs old and starting her speech around 3 1/2 yrs old after i started her schooling at age 3 yrs old.
i started late for her early intervention. but till now i never give up. i still bring her to ot and speech therapy. she even attending kumon, ballet,art, music(piano) and soon she will start her modern dance. in her school she swim 3 times aweek. i was very proud of her now and she did really improved alot these 3yrs.
another matter i would like to stress out to you is that now ur son is young, get him ready for his development as much as u can cos wen you come to 6yrs old there will be more problems for you especially his education and finding a perfect school for him.
in malaysia, the main problem for school is that they tend to isolate the special needs from the normal children. i had started looking for a school for her since she was 4yrs old till we found her present school-Tanarata International Schools. they have good teachers to guide them and the best about this school is they never treat them as a special needs student but equally with the other children
my daughter learnt alot from the normal children from her skill of speech and social skills. is a good sign though.
so i hope as a mother with special needs never ever give up on them and the need our support and encouragement forever.

By: daren

daren — Wed, 14 May 2008 16:21:44 +0000

Dear Building Rainbows & Rebekah

Tks so much for your encouragement. We can only take each day one step at a time, and with Him guiding us every step … we’re bound to reach the “promise land”.

By: Rebekah Khoo

Rebekah Khoo — Fri, 09 May 2008 04:06:11 +0000

Im so encourage by your endurance and faith in God. He is indeed miracle working God. He is our healer! physical,emotional & spiritual.
One day, we all shall reach our Canaan, the fullnest of His blessings if we do not give up.
All praise & glory to God.

By: build rainbows

build rainbows — Fri, 06 Apr 2007 09:27:00 +0000

I am so happy for the blessings your family has received. God is truly good. Prayers do help make miracles.

The world is filled with miracles, and people who want good for you. Sometimes you don't even know them.

Stay well, and blessings to you !